Proverbs 14:1
"The wise woman builds her house, but with her own hands the foolish one tears hers down." Proverbs 14:1
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Sunday, January 15, 2012
so frustrated with all of the doctors
I am so upset that Grace's GI doctor has not done a single test on her. We have seen her at least 10 times and she has yet to suggest any sort of testing. Every time we visit her she seems so lackadaisical about everything. She kept writing GERD in her chart and didnt even put the dairy and soy allergy in until the end of December. When she said she agreed with Esoniphillic Gastroenteritis it was because she "thought that all along and didnt want to use those big words because most parents dont understand". This is absolutely ridiculous, and I feel so stuck because the other doctor we saw didnt really want to say anything but exactly what she said. He kept telling me how they have "so many patients with EGE" and then in another sentence say, "its so rare there are only 2 patients per GI doctor". So he was lieing to me too... I feel like the military doctors dont care about my daughter. He also acted like she was so well off... SHE CANT EAT ANYTHING WITH OUT GETTING SICK... to me this is not well off.... I really want to see a non military doctor but I dont even know where to start with dealing with Tricare... and we cant switch to standard... it would be too expensive to pay all of those copays. On one hand I am happy to not have a co-pay, but on the other I know that something is wrong with my 9 month old, little baby, and no one cares to try to figure it out.... I just want to scream. Yeah other people have worse issues, but this is our issue, and to me it is big, I am tired of seeing my baby in pain and I feel like if there is at least a real diagnosis we can start to deal with it. Right now I am just thrown into nothing... absolutely nothing... no where to look for answers, no support, nothing.... I am so overwhelmed and no one is here helping me... I feel like the only one that cares... When she eats her bottle she is scrunching up her stomach in pain... What am I supposed to do??????????? I feel so stuck like I have no where to go, no answers... I am not satisfied with a half hearted diagnosis, all information on that disease says that a diagnosis requires a biopsy.... a BIOPSY.... you cant even diagnose someone without a biopsy and they are doing that... what if something else is wrong with her, what then? They would have no idea because they didnt check... it would be so easy to collect a stool sample or take some blood, it is a lot less painful that what she has to endure right now...
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{{hugs}} I don't know what to say. Everything I think of seems so shallow. Know you are loved Jessica and that God will bring you the answers you need. Grace is so lucky to have you for a Mommy.
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